cover image MS Madness: A Giggle-More, Cry-Less Story of Multiple Sclerosis

MS Madness: A Giggle-More, Cry-Less Story of Multiple Sclerosis

Yvonne deSousa. SDP Publishing, $14.99 trade paper (240p) ISBN 978-0-9899723-6-9

A week before Christmas in 2009, deSousa, a writer and blogger in her late 30s, receives a diagnosis that explains all of the mysterious symptoms she’s had for months: relapse-remitting multiple sclerosis. She’s thrown into a disorienting world of self-administered shots, exhaustion, and memory loss. Rather than descend into pity or bitterness, she decides to enjoy her favorite holiday while relying on her Catholic faith, a sense of humor, and family. DeSousa considers herself lucky: unlike her sister, who also has MS, she doesn’t need a cane or a brace to walk. That attitude, which helps her navigate the difficult early months, comes through right away in the book. At first, deSousa continues to hold down a stressful job and teach Sunday school, in part because, even with insurance, she worries about the mounting costs of dealing with the disease, but eventually, her disability forces her to quit working. She describes her deliberations over whether to spend 83¢ on a fountain soda, and her joy at discovering that the soda is actually free. With her new free time, she discovers previously untapped interests like writing and earns a scholarship to a writing conference and is published. In this heartfelt memoir, deSousa proves that while there is much to be frustrated and dispirited about, it’s possible to face quagmires with grace. (BookLife)